- Patients who may or will have an ostomy constructed during surgery and their families should be referred to an Enterostomal Therapy Nurse (ETN). (Level of Evidence: Low-Moderate). The ETN referral should include:
- Stoma Site Marking
Patients should have the stoma site(s) selected using established principles of stoma site marking. Marking should be performed by an ETN, surgeon or a health care professional who has received training in this procedure. (Level of Evidence: Moderate) - Preoperative Education
Patients and their families should receive preoperative education either individually or in a group setting. Information should be provided in a variety of modalities including, but not limited to, verbal, written and digital formats. Multi-lingual educational resources should be available for non-English speaking patients and families. (Level of Evidence: Moderate-High). At a minimum the following should be included in the teaching:● Basic anatomy and physiology of the GI/GU tract
● The surgical procedure and type of stoma, location and anticipated functional expectations
● Psychological preparation and lifestyle adjustment
● Introduction to pouching system options
● A demonstration on how to empty and change a pouching system. A return demonstration of pouch emptying should be done by the patient or family member. Patients should be encouraged to practice wearing and emptying their pouch and doing a pouch change at home prior to surgery.
● Postoperative expectations related to self-management of the ostomy (See recommendation 2.3)
● Possible complications related to dehydration, small bowel obstruction, stoma and peristomal skin health, development of parastomal hernia formation and pouching system wear times (See recommendation 3.4)
● Offer to pair individuals with a person with an ostomy (“ostomy buddy”)
● Information about industry sponsored programs
- Supporting rods are usually unnecessary. If used, timing for removal of the supporting rod should be decided in collaboration with the surgeon. (Level of Evidence: Moderate)
- Information provided to patients and their families in the preoperative phase should be reinforced postoperatively. (Level of Evidence: Low)
- Patients should be taught a minimum skill set specific to their ostomy needs prior to discharge from hospital:
- Patients should be encouraged to look at their ostomy on post-op day (POD) 0. (Level of Evidence: Low)
- Patients should be encouraged to participate in emptying their pouch on POD 1 and empty their pouch independently on POD 2. (Level of Evidence: Moderate)
- Patients should be encouraged to participate in changing their pouching system on POD 2 and fully participate in changing their pouching system on POD 3 or 4. Patients should have a minimum of 2 pouching system changes by POD 3 or 4. (Level of Evidence: Low)
- Families and caregivers should be encouraged to participate in the care and management of the patient’s ostomy. (Level of Evidence: Moderate)
- After ostomy surgery, patients should be discharged with community care support, which includes referral to a community ETN. (Level of Evidence: Moderate)
- Patients with an ostomy should have the recommended and required supplies and community care support. This includes follow-up care by an ETN in the acute care setting or in the community. (Level of Evidence: High)
- Minimum intervals of 2, 4, 6 weeks visits with an ETN
- Minimum of 6 visits by the community nurse
- Frequency of visits will be based on patient/family needs
- Reinforcement of recommended ostomy care education and general support through their local community care team (e.g. CCAC) (Level of Evidence: High)
- Regular evaluation of the patient’s stoma and peristomal skin, the ability to achieve a predictable seal, and the ability to maintain peristomal skin health (Level of Evidence: Low-High)
- Ongoing information and support to the patient about adaptation to an ostomy (Level of Evidence: Moderate-High)
- Follow-up to ensure the patient (or primary care giver) is independent with pouch changes by postoperative week 2 (Level of Evidence: Low-Moderate)
- Patients should be provided with information on support services to facilitate their adaptation to a new ostomy including how to access ostomy support groups/resources, and programs sponsored by industry (Level of Evidence: High)
- Patients should receive a follow-up phone call from an ETN within 7-10 days after discharge from the hospital to assess their adaptation to a new ostomy. (Level of Evidence: Low)
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Patients must be able to recognize potential complications and know what resources to contact for the following:
- Hydration status through monitoring expected volume of ostomy effluent, oral fluid intake and urine volume for 2 weeks post-discharge (Level of Evidence: Moderate)
- Signs and symptoms of obstruction which include abdominal pain, cramping, distention, high velocity watery output or no output, and/or vomiting (Level of Evidence: High)
- Normal and common abnormal peristomal skin conditions, such as Peristomal Moisture Associated Skin Damage (PMASD) (Level of Evidence: High)
- Signs and symptoms of a parastomal hernia include bulging of the abdomen around the stoma, pain and discomfort (Level of Evidence: Low)
- Wear-times for their pouching system are less than expected (Level of Evidence: Low)
- Families and caregivers should be encouraged to participate in the care and management of the patient’s ostomy. (Level of Evidence: Moderate)
- After ostomy surgery, patients should be discharged with community care support, which includes referral to a community ETN. (Level of Evidence: Moderate)
Preoperative information provided will vary from person to person based on their individualized needs and preferences (Level of Evidence: Low). Teaching may include:
- Basic anatomy and physiology of the GI/GU tract
- The surgical procedure and type of stoma including stomal characteristics (location, construction, colour size, protrusion, output/consistency, gas/flatus and odour, temporary vs. permanent)
- Pouching system options and other possible accessories
- A demonstration on how to empty and change a pouching system. A return demonstration of pouch emptying should be done by the patient of family member. Patients should be encouraged to practice wearing and emptying their pouch and doing a pouch change at home prior to surgery
- Post-operative course and goals of care, including the need for active involvement in ostomy care
- Vendor information
- Available funding sources (government and supplemental health coverage).
- Industry sponsored programs
- Home care support on initial discharge
- Transition programs
- Role of the ETN and other members of the health care team in post-operative teaching
- Temporary physical restrictions imposed on the patient to prevent incisional complications
- Dietary modifications when indicated
- Bathing and showering
- Intimacy and sexuality
- Offer to pair individuals a person with an ostomy (“ostomy buddy”) and to enroll in industry sponsored programs (Ostomy Association, CCS)
- Lifestyle adjustment
- Psychological preparation
- Possible complications related to dehydration, small bowel obstruction, stoma and peristomal skin health, development of parastomal hernia formation and pouching wear-times
- Other topics as guided by patients/family questions/concerns arising during the teaching session
At a minimum the following should be included in the teaching: (Level of Evidence: Low)
- Basic anatomy and physiology of the GI/GU tract
- The surgical procedure and type of stoma, location and anticipated functional expectations
- Psychological preparation and lifestyle adjustment
- Introduction to pouching system options
- A demonstration on how to empty and change a pouching system. A return demonstration of pouch emptying should be done by the patient or family member. Patients should be encouraged to practice wearing and emptying their pouch and doing a pouch change at home prior to surgery
- Postoperative expectations related to self-management of the ostomy (See recommendation 2.3)
- Possible complications related to dehydration, bowel obstruction, stoma and peristomal skin health, development of parastomal hernia formation and pouching system wear times (See recommendation 3.4)
- Offer to pair individuals a person with an ostomy (“ostomy buddy”) and information about industry sponsored programs
- Other topics as guided by the patient’s/family’s questions/concerns arising during the teaching session